Health Department Under Fire from NI Charities

August 19,2024

Business And Management

Department of Health: Loss of Charity Support Funds a 'Devastating' Blow

Charities across Northern Ireland are expressing deep concern over the impending end of support funds dedicated to crucial services in cancer care, mental health, and carer support. These funds, established in 2021 by the  Department of Health (DOH) as a response to the COVID-19 pandemic, are set to expire. The DOH maintains that an extension is not feasible due to its current financial situation.

The Voices of Those Affected

Individuals like Terri McQuaid, a full-time carer for her husband, have found the respite provided through these funds to be an absolute lifeline. Terri's husband Brian, 68, suffers from a rare form of Alzheimer's, leaving him housebound.  Happiness Cafés, a respite care program, grants Terri a much-needed break from her caring role.

"It's called a Happiness Café, and that's precisely what it is," Terri explains. "Just two hours of happiness." She describes the carers who provide respite as essential. "I don't know what we would do without them," she admits.

While Terri also receives support from the Health Trust, the additional hours provided by the carers' fund are vital. They allow her to do "normal things," whether it's going to a café, meeting friends, getting her hair done, or taking a walk. The Happiness Cafés also connect Terri with other carers, providing a space for mutual support and understanding throughout her challenging journey with her husband.

Terri expresses deep anxiety over the potential loss of funding. She fears the impact it will have on her mental and physical wellbeing. "If we lose that funding, how is that going to affect my mental health?" she questions. "My husband depends on me, and if I'm not fit to look after him, what's going to happen to him?"

Marie O'Brien, chief executive of Happiness Cafés, echoes these concerns. The charity has provided hundreds of hours of care, but their funding is also set to expire. Marie emphasizes that those who rely on these services will be "devastated." Some who utilize the in-home respite care may no longer be able to attend the café if their loved one is bedbound. She stresses the importance of these breaks for carers, preventing social isolation.

Cancer Support: A Lifeline

Gloria Matthews, at age 60, considers herself cancer-free after enduring three separate cancer diagnoses within a five-year period. Her journey began with breast cancer in 2005 when she was just 42. After discovering an advertisement in the local paper, she connected with Cancer Lifeline, an organization that's supported people affected by cancer in north Belfast for nearly 25 years. She describes accessing the services, particularly counselling, as a "saving grace."

However, Gloria's cancer returned, spreading to both lungs and a tumour forming in her neck. In 2008, she received a harrowing terminal diagnosis with a life expectancy of 12 to 18 months. "That was worse than the first diagnosis," she recalls, fearing what it all meant for her young daughters. She fought tirelessly for them and herself. Remarkably, after aggressive treatment, her cancer receded.

This experience highlighted the ripple effect of cancer – the pain wasn't limited to just Gloria. Recognizing this, Cancer Lifeline became a support system for her entire family, easing her burden. "They offer the same services to family members as we do to the cancer patient," Gloria explains.

As a board member, the prospect of losing funding is both personally and professionally devastating. The loss, she says, jeopardizes potential jobs, puts additional strain on the Health Service, and most importantly, abandons cancer patients at the heart of it all.

The Background

The funds in question were administered by the Community Foundation NI using emergency COVID-19 funding allocated to the Department of Health. Established as a one-off, non-recurring measure for a three-year period (April 2021 to March 2024), the resources are now exhausted.

Department of Health

Plea for Continued Support

Richard Rogers, the health funds coordinator at the Community Foundation NI, paints a stark picture of the consequences. He reports that 179 organizations and 233 projects have benefited from this funding. With funds drying up, Rogers warns that some organizations may completely cease operations, while others will be forced to significantly reduce their services. While larger charities might be more resilient, the impact on the majority of these organizations will be immense.

"We're hoping to lobby the [health] minister and the department [of health]," Rogers says. His aim is to make a compelling case for continued investment in these critical funds and the organizations that rely on them.

The Department of Health acknowledges the issue, stating that it will collaborate with the Community Foundation NI to thoroughly evaluate the impact of the funds. It has also indicated that it will "continue to explore ways to minimize the impact on services."

Department of Health: Mental Health in Focus

The funding cuts are a significant blow to organizations dedicated to mental health support.  AWARE NI, a leading charity in this space, has raised concerns over the potential consequences. The organization's fundraising manager, Kerrie Flood, stresses the increase in demand for its services, citing a 67% jump in referrals to its support groups in the last five years.

"It will be a huge loss if the mental health support fund ends," Kerrie explains. "The money has been incredibly valuable in establishing new services and making our existing programs more accessible."

One crucial program provided by AWARE NI is its 'Living Life to the Full' course which empowers individuals to better manage anxiety and low moods – issues often exacerbated by stressful personal circumstances like those faced by carers.

AWARE NI also provides support services for young people. The charity warns that cutting funding would severely hamper its ability to reach young people in need at a crucial stage in their lives, jeopardizing their mental well-being. Kerrie underscores that investing in such support services offers significant long-term preventative benefits, reducing the potential burden on the health system down the line.

The Wider Impact

The repercussions of losing this funding extend far beyond the immediate implications for these charities. The wider healthcare system is likely to experience increased strain. Family doctors (GPs) may face even greater pressure to deal with issues these charities once addressed – issues like supporting individuals in the early stages of mental health difficulties or providing much-needed respite for carers.

This strain could have a domino effect. If doctors are overwhelmed with more complex cases, this might further lengthen waiting lists for specialized mental health treatment within the health service, creating a bottleneck in overall patient care.

Furthermore, there's the human cost. Without support from these charities, many individuals and families face a greater risk of crisis situations. Early intervention and support are critical. If these channels are diminished, individuals may find themselves reaching a breaking point. The consequences have the potential to be dire for individuals, their families, and the health service at large.

The Urgency of the Matter

The expiration of these funds is impending. While the Department of Health has expressed a desire to minimize the impact, charities and affected individuals are deeply concerned about the looming gap in services. The urgent need for continued investment cannot be overstated

Samaritans: A Vital Lifeline Under Threat

The Samaritans, another crucial mental health organization in Northern Ireland, is also facing the repercussions of the funding cuts. The charity offers a 24/7 listening service, providing a lifeline for those struggling with emotional distress and suicidal thoughts.

With no functioning government in Northern Ireland at present, the charity warns that the impact of funding cuts could be particularly severe. Unlike other regions of the UK, it will not receive the same level of financial cushion in the form of in-year Barnett consequentials. This leaves the Northern Ireland branch of the Samaritans disproportionately exposed, compromising their ability to maintain their vital services.

The Samaritans are particularly concerned about the impact on vulnerable individuals. The cost-of-living crisis, soaring energy prices, and general economic uncertainty are already putting enormous strain on people's mental health. Now, the loss of this vital source of support could have devastating repercussions. Calls to their helpline may increase sharply just as their resources are being depleted.

The Voices of Samaritans Volunteers

A volunteer at the Belfast branch of the Samaritans, speaking on condition of anonymity, emphasizes the importance of the work they do. "We're there for people when they feel they have nowhere else to turn," the volunteer explains. "The phone rings, and we answer, giving that person time and a listening ear in their darkest moments."

However, without sufficient funding, the charity's capacity to answer calls becomes significantly compromised. This volunteer points out that even a seemingly small reduction in available shifts can result in many missed calls, leaving individuals who are reaching out for help feeling even more isolated and desperate.

Volunteers like this one are passionate about the Samaritan's mission. They worry about potential gaps in service and the profound effect this could have on those who desperately need their compassionate ear. The volunteer describes it as a matter of "life or death."

The Ripple Effect of Lost Support

The impact of losing these critical charities extends beyond those they serve directly. Consider the far-reaching consequences for families, loved ones, and communities as a whole. Untreated mental health issues can lead to a decline in a person's functionality, relationships, and general well-being. Severe mental health crises can also put an immense strain on emergency services, further taxing our already overburdened healthcare system.

The loss of funding for cancer charities jeopardizes vital support for people undergoing treatment as well as survivors navigating life after a diagnosis. Access to support groups, counselling, and specialized therapies can mean the difference between simply surviving cancer and truly regaining a sense of normalcy and vitality.

In the case of carer support, these funds provide respite and a sense of community to individuals whose lives can be deeply isolating. Losing this lifeline jeopardizes the carer's ability to continue with their role. Moreover, it puts immense strain on their own well-being, both physically and mentally.

The Need for Sustainable Solutions

The funding cuts expose a critical need for sustainable, long-term support for these charitable organizations. One-off funding measures, though helpful in the short term, do not address the ongoing needs of the community.

Advocates and those working within the charitable sector are urging the Department of Health to consider implementing measures like multi-year funding agreements. This would provide stability and enable these organizations to plan effectively, maximizing the impact of their services.

Time is of the essence. Lives and the well-being of countless individuals rest on whether the funding gap that's looming can be bridged.

Beyond the Statistics: The Human Cost

While the impact of these funding cuts can be measured in terms of services lost and jobs at risk, what's often most difficult to articulate is the profound human cost. Each statistic represents a life turned upside down, a family struggling, a person potentially teetering on the edge of despair.

The loss of funding translates into missed connections, unanswered calls, and delayed help. This can have devastating consequences, from individuals spiralling deeper into mental health crises to cancer patients feeling unsupported as they deal with the aftermath of treatment. It means fewer respite hours for carers who quietly shoulder immense burdens, often to the detriment of their own health.

For some, losing access to these charities might be the difference between finding a path forward and being consumed by their struggles. The consequences can be far-reaching, potentially leading to job losses, family breakdowns, and even increased risk of self-harm and suicide.

These are complex issues; there are no easy solutions. However, continued investment in these essential services is a matter of prioritizing the health, well-being, and ultimately, the lives of citizens within our society.

Department of Health: Alternative Funding Sources?

In light of the Department of Health's fiscal constraints, charities are exploring other potential avenues of funding. Fundraising and philanthropic donations are essential, but these sources can be unpredictable and often come with restrictions on how the funds can be used.

Some argue that there needs to be a shift in mindset. Rather than treating support from these charities as an optional extra, a strong case can be made that they should be seen as an integral and necessary part of the overall healthcare system. This reframing could potentially lead to a more integrated, collaborative model, with sustained long-term funding coming directly from the health service to support specific outcomes.

Charities as Vital Partners in Health and Social Care

This approach would recognize the unique and valuable expertise held by charities, enabling them to operate as vital partners in delivering health and social care. Furthermore, by focusing on measurable results achieved through this collaboration, the charities can make a compelling argument for continued investment on the basis of efficiency and value.

Public-private partnerships are another option worth exploring. Collaboration with businesses could unlock new resources and support, potentially leading to innovative approaches in terms of fundraising and service delivery.

A Call for Action

The current situation presents a stark wake-up call. We need a robust, adaptable funding model that safeguards essential charitable services. As a society, we must decide how to best support and care for the most vulnerable within our communities.

Individuals can play a vital role in advocating for continued support. Contacting elected officials, sharing these stories, and donating to the affected charities are ways to demonstrate public concern and create pressure for meaningful action.

However, it's important to go beyond simply advocating for the restoration of the previous funding scheme. The goal should be the creation of a system that ensures ongoing, sustainable support for charities addressing the most pressing mental health, cancer care, and carer needs.

It's a matter of prioritizing investment in the health and well-being of our population. Failure to do so carries not only a human cost but also long-term economic consequences. Charities play an indispensable role in providing support that prevents situations from deteriorating and reaching crisis points, thereby easing pressure on the health service in the long run.

Department of Health: A Time for Boldness

This crisis calls for bold and creative solutions. While the Department of Health faces its own financial challenges, it's time to think beyond short-term budgetary limitations and take a wider perspective on the significant cost-effectiveness of supporting these vital services.

The voices of charities and those benefiting from their services must be amplified. The public needs to fully understand the impact of these potential cuts and the ripple effects throughout our communities. By sharing personal stories and highlighting the essential work these charities do, there's the potential to shift public discourse and apply pressure on decision-makers.

Charities themselves need to become even more adept at demonstrating their value proposition. Quantifying the number of individuals helped, gathering robust data on the positive health outcomes achieved, and presenting cost-benefit analyses in relation to their work will be crucial in making the argument for continued funding.

Political leadership is essential. In the absence of a functioning government, civil servants within the Department of Health must urgently prioritize this issue. However, it ideally requires cross-departmental collaboration to find innovative ways to secure resources and support these crucial services.

Now is the time for the formation of a broad coalition. Charities, service users, advocacy groups, health service professionals, and concerned citizens must unite their voices. This collective advocacy carries far greater weight and will be significantly more potent in influencing decision-making.

A Path Forward

The expiration of these support funds throws the future of vital health and social care services in Northern Ireland into disarray. The consequences are potentially devastating for individuals, families, and our health system as a whole.

The current situation presents a stark choice. It's a choice between continuing down a path that leads to increased strain on the already overburdened health service, worsening outcomes for people facing serious health challenges, and potential breakdowns within families and communities.

Alternatively, we can seize this moment to forge a path forward. This is an opportunity to create a more robust and sustainable model of funding that recognizes the vital role that charities play in delivering essential services. It's about making bold choices that prioritize the health, well-being, and overall resilience of our society.

By prioritizing investment in these vital charities, we're not just mitigating the consequences of health crises; we're also investing in the long-term well-being of countless individuals in Northern Ireland. It's a choice that speaks to the type of society we wish to create – one marked by compassion, empathy, and a genuine commitment to ensuring that nobody is left behind to face their darkest moments alone.

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